Short Story

Aggeliki-Nektaria is a 10-year-old girl who has been struggling since the age of 8 months old, as she has been diagnosed with a mutation of the PTEN gene, which manifests itself with the presence of lipomas and arterio-venous malformations. So far, the young girl has been subjected thrice to a surgical resection of the lipomas, while over the past few months, she had to undergo an endovascular embolization twice, since she has been presenting with an extensive arterio-venous malformation to the shoulder area. The young girl is currently recovering at her home, while in the foreseeable future, she will have to undergo a surgical resection of the dysplasia.



10-year-old Aggeliki- Aggeliki- Nektaria is suffering from a rare syndrome and she needs to be immediately subjected to sclerotherapy and surgery!

by Act of Kindness

  • 145.882

    Funding Goal
  • 74.936,41

    Funds Raised
  • 0

    Days to go
  • Target Goal

    Campaign End Method
Raised Percent :
51.37%
Minimum amount is € Maximum amount is € Put a valid number

Act of Kindness

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Campaign Story

Aggeliki-Nektaria is a 10-year-old girl who has been struggling since the age of 8 months old, as she has been diagnosed with a mutation of the PTEN gene, which manifests itself with the presence of lipomas and arterio-venous malformations. So far, the young girl has been subjected thrice to a surgical resection of the lipomas, while she also had to undergo an endovascular embolization, since she has been presenting with an extensive arterio-venous malformation to the shoulder area.

Due to the rarity of this case, the procedure had to be performed in a private clinic of Athens, by a specialized team of interventional radiologists. Aggeliki-Nektaria’s family had found themselves in a dead end, since they were unable to cope with the cost of the procedure. Without wasting any time, ACT OF KINDNESS organized an aid campaign and thanks to your immediate response, we managed to gather, in a short period of time, the amount required for the young girl’s procedure.

According, however, to the interventional radiologists who took on her case, the girl had to be subjected to a second embolism, which was in fact performed a few days ago. The young girl is currently recovering at her home, while in the foreseeable future, she will have to undergo a surgical resection of the dysplasia.

The young girl’s family has found themselves in a dead end once more, since they don’t have the means to cover the cost of the second embolism, as well as the cost of the upcoming surgery. After taking into consideration the new circumstances and the needs that have arisen for this family, we are organizing one more aid campaign, in order to support this young girl who has been struggling ever since she was just a toddler.

Aggeliki-Nektaria is a true fighter that keeps on smiling no matter the difficulties she is experiencing. We have the power to help her. To free her from this painful dysplasia, which has been tormenting her over all these months. Together, we can make it happen!

 


To send you the invoice, click here 


You can help by the following ways:

  • by entering the campaign’s webpage and making an online deposit using your debit or

credit card (through Viva Wallet, Paypal, Stripe).

  • by making a deposit to one of the following bank accounts: Reference “AGGELIKI-NEKTARIA 245”

 

Piraeus Bank 

          Account number: 5222091702771

          IBAN: GR4101722220005222091702771

          SWIFT-BIC: PIRBGRAA

          Beneficiary: PRAXI AGAPIS-ACT OF KINDNESS

 

National Bank

          Account number: 21000630539

          IBAN: GR4401102100000021000630539

          SWIFT-BIC: ETHNGRAA

          Beneficiary: PRAXI AGAPIS-ACT OF KINDNESS

 

Alpha Bank

          Account number: 701002002030506

          IBAN: GR0401407010701002002030506

          SWIFT-BIC: CRBAGRAA

          Beneficiary: PRAXI AGAPIS-ACT OF KINDNESS 

 

Eurobank

          Account number: 00260024130201219506

          IBAN: GR6502600240000130201219506

          SWIFT-BIC: SWIFT-BIC: ERBKGRAA

          Beneficiary: PRAXI AGAPIS-ACT OF KINDNESS

 

  • – by making a donation through the DIAS internet banking payment system, using this

campaign’s unique RF56917199245245245245245 payment.

  • – by sending a text message to 19825. The message must read: “AGGELIKI-NEKTARIA 245”. (Charge  2,71€ /SMS)

 

*the charges include VAT as well as mobile subscriber fee. This number is available for all fixed and mobile telephony providers in Greece.

 

 

 

 

 

  • 27-09-2023

    10-year-old Aggeliki- Aggeliki- Nektaria is suffering from a rare syndrome and she needs to be immediately subjected to sclerotherapy and surgery!

    <p>Aggeliki- Nektaria is a ten-year-old girl who has been facing a lot of challenges, since she has been diagnosed with a rare genetic mutation. It all started when the little girl was just 8 months old, when she started to develop lipomas to the right axilla, which were surgically removed. 3 months later however, she developed lipomas to the exact same spot. That’s when the family’s paediatrician referred them to an oncology hospital for further tests. When the parents received the results of the whole body MRI screening, they couldn’t believe their eyes. The child was filled with lipomas to the colon and the thoracic cavity. As a result, she was immediately subjected to surgery. A few months later, the parents received the results from the genetic testing. Turns out, the child is suffering from a mutation of the PTEN gene, a condition that manifests itself with the presence of lipomas and colon polyps, causing high risk for cancer.<br />
    Her latest whole body MRI screening, revealed lipomas to the colon, the genitals and the trachea, which are greatly affecting her respiratory functions. At the same time, she has also developed fibromuscular dysplasia at her shoulder, which is gradually increasing in size, causing pain to the area.<br />
    According to the oncologists who monitor Aggeliki- Nektaria’s condition, the little girl needs to be immediately subjected to a series of sclerotherapy sessions, in order to eliminate the fibromuscular dysplasia. At the same time, she must also be subjected to surgical resection of the lipomas, which are obstructing the proper function of her vital organs.<br />
    Due to the rarity of this case, the surgery and treatments will be performed in a private clinic of Athens. Unfortunately, Aggeliki- Nektaria’s parents are unable to cope with the cost of the surgery and the sclerotherapy sessions, since after all these years, they have reached a financial dead end.<br />
    Little Aggeliki- Nektaria is a real fighter, who has been struggling ever since she was an infant, while being subjected to numerous surgeries and treatments. Today however, her condition has deteriorated to the point where she is unable to breathe, while she is also experiencing a lot of pain. Let us all make sure that she has the chance to be subjected to the surgery and treatments that will alleviate her suffering! Together, we can make it happen!</p>

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  • 05-10-2023

    We are halfway there! 1 week-27.360 Euros-hundreds of people who stepped up!

    <p>We thank you for every donation, every share, every prayer!<br />
    We will not give up until we reach our funding goal of 55.038 Euros and ensure that Aggeliki-Nektaria has the chance to be subjected to the surgery and sclerotherapy she requires! By clicking on the aid campaign’s link, you can watch the progress of the aid campaign and the detailed list of the donations.<br />
    Aggeliki-Nektaria is a 10-year-old girl who has been facing a lot of challenges, since she has been diagnosed with a rare genetic mutation. According to the oncologists who monitor her condition, the little girl needs to be immediately subjected to a series of sclerotherapy sessions, in order to eliminate the fibromuscular dysplasia. At the same time, she must also be subjected to surgical resection of the lipomas, which are obstructing the proper function of her vital organs.<br />
    Due to the rarity of this case, the surgery and treatments will be performed by a team of surgeons of various specialties, in a private clinic of Athens. Unfortunately, Aggeliki- Nektaria’s parents are unable to cope with the cost of the surgery and the sclerotherapy sessions, since after all these years, they have reached a financial dead end.<br />
    Little Aggeliki- Nektaria is a real fighter, who has been struggling ever since she was an infant, while being subjected to numerous surgeries and treatments. Today however, her condition has deteriorated to the point where she is unable to breathe, while she is also experiencing a lot of pain. Let us all ensure that she has the chance to be subjected to the surgery and treatments that will alleviate her suffering! Together, we can make it happen!</p>

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  • 07-11-2023

    We are getting closer to the goal! Thank you all for mobilizing! We continue dynamically for Angeliki-Nektaria!

    <p>In a few days, the young girl will be admitted for the first part of the sclerotherapies, as well as for the surgery that will offer her the opportunity for a healthy and auspicious future! Let’s finish the campaign and secure the full amount required!<br />
    By entering the link of our campaign you can follow in detail the progress of the campaign and the detailed list of donations.<br />
    We remind you that Angeliki-Nektaria is a ten-year-old girl who faces an extremely difficult everyday life, since she has been diagnosed with a rare gene mutation. According to oncologists who monitor Nektaria’s course, the little girl must immediately undergo sclerotherapy sessions to eliminate vascular malformation, while at the same time she will need to undergo surgical removal of lipomas that interfere with the functioning of her vital organs.<br />
    Due to the rarity of the case, the procedures will be performed by a specialized, multidisciplinary, surgical team in a private center in Athens. The costs are exorbitant and only if we unite can we secure them immediately and carry out the necessary treatments on time. Little Angeliki-Nektaria is a real fighter, who suffers from such a young age with treatments and surgeries. Now the situation has worsened with unbearable pain and difficulty breathing.<br />
    Let’s go and secure the treatment and surgery that will give her life and free her from her Calvary!<br />
    All together, we can do it!</p>

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  • 08-11-2023

    Together, we made it happen for little Aggeliki- Nektaria! The life-saving surgery will be performed in a few days!

    <p>We are excited to announce to you that we have finally gathered the amount required for the surgery and sclerotherapy sessions, to which the little girl must be immediately subjected to. And we owe that all to you, who stood by this family who have been doing everything in their power in order to provide their child with the best medical care possible!<br />
    Hundreds of people, corporations, organizations, as well as local shops of the city of Vonitsa, where the family resides, immediately responded to this family’s call for help. And that’s when the miracle happened. We put our love into action and we managed to achieve the impossible!<br />
    In a few days, Aggeliki- Nektaria will be admitted to the clinic, in order to be subjected to this long surgery, while afterwards she will proceed with her sclerotherapy sessions, which will eliminate the varicose veins. We will remain in contact with the family and the clinic’s medical staff, while keeping you updated on any new information.<br />
    Our beloved Aggeliki- Nektaria, we are wishing you a speedy recovery! Our thoughts and prayers are with you and we are confident that the surgery will be a success!<br />
    God bless you all!</p>

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  • 09-01-2024

    We secured the big surgery of 10-year-old Angeliki-Nektaria!

    <p>A family with accumulated anxiety about the progress of its course, as well as residual costs from previous surgery and hospitalizations, can now continue the struggle with relief.<br />
    Not only did we pay off previous debts to the Clinic where the 10-year-old fighter was in a previous year, but we also financially secured the major surgery she will undergo at the end of January.<br />
    57.056€ were raised because we all joined together!<br />
    We continue to stand by Angeliki-Nektaria, every child and every adult who needs us!</p>
    <p>Thanks!</p>
    <p> </p>

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  • 12-04-2024

    Aggeliki-Nektaria will soon be subjected to a surgical excision of the arterio-venous malformation she is suffering from and she needs our help!

    <p>Aggeliki-Nektaria is a 10-year-old girl who has been struggling since the age of 8 months old, as she has been diagnosed with a mutation of the PTEN gene, which manifests itself with the presence of lipomas and arterio-venous malformations. So far, the young girl has been subjected thrice to a surgical resection of the lipomas, while she also had to undergo an endovascular embolization, since she has been presenting with an extensive arterio-venous malformation to the shoulder area.<br />
    Due to the rarity of this case, the procedure had to be performed in a private clinic of Athens, by a specialized team of interventional radiologists. Aggeliki-Nektaria’s family had found themselves in a dead end, since they were unable to cope with the cost of the procedure. Without wasting any time, ACT OF KINDNESS organized an aid campaign and thanks to your immediate response, we managed to gather, in a short period of time, the amount required for the young girl’s procedure.<br />
    According, however, to the interventional radiologists who took on her case, the girl had to be subjected to a second embolism, which was in fact performed a few days ago. The young girl is currently recovering at her home, while in the foreseeable future, she will have to undergo a surgical resection of the dysplasia.<br />
    The young girl’s family has found themselves in a dead end once more, since they don’t have the means to cover the cost of the second embolism, as well as the cost of the upcoming surgery. After taking into consideration the new circumstances and the needs that have arisen for this family, we are organizing one more aid campaign, in order to support this young girl who has been struggling ever since she was just a toddler.<br />
    Aggeliki-Nektaria is a true fighter that keeps on smiling no matter the difficulties she is experiencing. We have the power to help her. To free her from this painful dysplasia, which has been tormenting her over all these months. Together, we can make it happen!</p>

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