Short Story

Theofania is an adorable little girl, who has been diagnosed with a rare metabolic disorder which is called pyruvate dehydrogenase deficiency, and which manifests itself with severe psychokinetic delay and microcephaly. Over the past one and a half years, Theofania is being subjected to an intensive speech therapy, occupational therapy and physiotherapy program, while her developmental progress is gradually improving, since she has developed her chewing skills, while she is now able to take a few steps with the help of her physiotherapist.

Theofania is suffering from a rare metabolic disorder and she needs to proceed with her treatments!

by Act of Kindness

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  • 4.659,96

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Act of Kindness

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Campaign Story

Theofania is an adorable little girl, who has been diagnosed with a rare metabolic disorder which manifests itself with severe psychokinetic delay and microcephaly. When the little girl came into this world, she wasn’t presenting with any health problems, while her parents were excited to welcome the sixth member of their family. As months went by, however, her parents noticed that their little girl’s head wasn’t increasing in size, while she constantly seemed lethargic and tired. They consulted with their pediatrician, who referred them to a genetic testing specialist. The test results, however, were a punch in the gut: pyruvate dehydrogenase deficiency, a rare metabolic disorder which causes severe psychokinetic delay and microcephaly.

Over the past one and a half years, Theofania is being subjected to an intensive speech therapy, occupational therapy and physiotherapy program, while her developmental progress is gradually improving, since she has finally developed her chewing skills, while she is now able to take a few steps with the help of her physiotherapist.

As we can all understand, the child’s health-related expenses have brought the family of six to a dead end, since the child’s treatments are not all covered by the family’s health insurance. Little Theofania’s parents reached out to ACT OF KINDNESS, and thanks to your sensitivity, we managed to cover the cost of the child’s treatments and medical expendable supplies, for one whole year!

Today, however, Theofania’s family is asking for our help one more time, since according to the pediatric neurologists and developmental pediatricians who monitor her condition, the little girl needs to proceed with her treatments, since they are essential for her overall health.

Little Theofania has been fighting her own battle ever since she came into this world. We have the power to help her. We have the power to improve her quality of life! Together, we can make it happen!


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You can help by the following ways:

  • by entering the campaign’s webpage and making an online deposit using your debit or

credit card (through Viva Wallet, Paypal, Stripe).

  • by making a deposit to one of the following bank accounts: Reference “THEOFANIA 036”

 

Piraeus Bank 

          Account number: 5222091702771

          IBAN: GR4101722220005222091702771

          SWIFT-BIC: PIRBGRAA

          Beneficiary: PRAXI AGAPIS-ACT OF KINDNESS

 

National Bank

          Account number: 21000630539

          IBAN: GR4401102100000021000630539

          SWIFT-BIC: ETHNGRAA

          Beneficiary: PRAXI AGAPIS-ACT OF KINDNESS

 

Alpha Bank

          Account number: 701002002030506

          IBAN: GR0401407010701002002030506

          SWIFT-BIC: CRBAGRAA

          Beneficiary: PRAXI AGAPIS-ACT OF KINDNESS 

 

Eurobank

          Account number: 00260024130201219506

          IBAN: GR6502600240000130201219506

          SWIFT-BIC: ERBKGRAA

          Beneficiary: PRAXI AGAPIS-ACT OF KINDNESS

 

  • – by making a donation through the DIAS internet banking payment system, using this

campaign’s unique RF45917199036036036036036 payment.

  • – by sending a text message to 19825. The message must read: “THEOFANIA 036”. (Charge  2,71€ /SMS)

 

*the charges include VAT as well as mobile subscriber fee. This number is available for all fixed and mobile telephony providers in Greece.